Posts Tagged With: M.S.

Discarded Obama Campaign Stickers

I was visiting overseas during the U.S. Presidential election, but I tried to stay informed. This was my first time to ever contribute to a Presidential campaign. I was also the first time I was really actively involved in any campaign. The Obama campaign had sent me a few bumper stickers as a thanks for donating and I was so excited that whenever I do get home… I was going to be able to post my Obama stickers on my little OLD truck. But my conservative mother threw them away! No thought given to the idea I may WANT them. No consideration, just trash. Some I had actually purchased. 

This campaign MEANT something to me! I willingly gave up my middle class lifestyle because of my Multiple Sclerosis and I had a tough decision to make – my lifestyle or my health. My health won-out! I gave up living in a nice house with one of my most favorite people in the world as a roommate, driving a BMW convertible and living in the exciting city of Las Vegas for living at home with my parents, with no car, in a small town in Mississippi. Like I said… NOT an easy decision, but a necessary decision. I knew the sacrifices I was going to have to make and I was lucky to have a loving and supportive family to help me.  

I struggled for two years with no healthcare because my M.S. was a pre-existing condition and this was during the time Obama was trying to get what is now labeled Obamacare passed. For the first time I saw something in politics that directly affected me and it was the President leading the cause. My new standing as a poor person with no insurance helped me see a side of this issue like others could not. I was living solely on my social security disability income and living at home, I was still only barely by. Eventually I qualified for Medicare and FINALLY had health coverage.  

My conservative, Republican, Christian family that watched more Fox News than ANY other news outlet, called Obama a socialist and believed all Fox News said, even though I was one of the very people Obama was trying to help with Obamacare – they saw it as evil and bad and so was Obama. This is when a passion for what was going on in politics began to grow IN me. My frustration also grew because I could not get them to see and understand – I AM ONE OF THOSE PEOPLE” Fox News is demeaning! My parents had Social Security & Medicare and others in my family even had Medicaid and they witnessed my struggle with health issues all-the-while I had no health insurance. I began to see “conservative” to equal – I got mine and I do not care about you.

Needless to say this created a struggle for me in relating to my family and even strains our relationship today. I felt like an outsider in my own family.  Church was so important and BEING Christian was even more important. But as the conservatives boasted of their Christianity, I witnessed a great deal of not so Christian actions. Being gay has helped me see “church”, Christians, and even God in a much different light. I saw the principles of the Democrats relate more to Christianity than the “religious right”. I wrote a blog specifically to try to engage people to explain how “conservatives” were Christian (http://wp.me/pKLa8-GU) and e-mailed a blog that asked the same but in a friendlier tone than I had be able to muster! (http://www.patheos.com/blogs/faithforward/2012/11/time-for-christians-to-make-a-choice/) Republicans extol their Christianity but for me it conflicts with their politics and I feel the Democrats live it by their politics.

I see Jesus as someone that would spend time with gays, having wine and talking with them, not standing in line at Chick-fil-a so the company has more money to prevent gays having equality! I see Jesus touting the GOOD of Obamacare, not worrying how it could affect his personal coverage if the uninsured get access to care! This creates for me my biggest struggle – it makes me see my dearly devoted, Christian mother and others in my family as hypocrites! They already dislike me for being so different in how I think… how could they deal with being viewed as hypocrites? Or possibly even racist because of things they say about Obama? Oh yeah, that is why it was such an internal struggle for me to live that close to them. I hate myself for seeing my family the way I do. We DO love each other… but there is no respect unless there is agreement and I just can’t agree with them. They refuse to listen to my points because I think they do not want to see the hypocrisy. But any attempts I make to talk and try to understand only ends badly! I am a critical-thinker and NEED more than rhetoric and “faith” to understand things! Now I live far away and even at a distance it still hurts me!

My father was diagnosed with Dementia and suddenly Fox News was not on the tv as much (if any actually). A few months later he had a stroke, then 9 days later died. At his funeral, all that spoke (including me) mentioned his trademark little, old, piece of crap Toyota trucks he had over the years.  I did eventually get a little money and had the opportunity to travel to see my friend I call Little Buddy (one of my FAVORITE people in the world) and when I returned from that trip – I bought a little, old, piece of crap Toyota truck like my Dad used to have. I was looking forward to putting my Obama stickers on MY little, old truck, but they were thrown away because no one considered them relevant at that house  – the same as me… discarded without consideration or concern!

P.S. I do love my family and they do love me… like my facebook relationship status says – it’s complicated! My writing is to express feelings I am unable to share otherwise and this is how I feel now.

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Optimistically Pessimistic or Just a Realist?

For many, they would see that a person is either an optimist or a pessimist but in true fashion, I even complicate these descriptions when I self diagnose.  I see myself as optimistically pessimistic!  What is my rationale?  I enter sweepstakes and buy lotto thinking I have as much a chance to win as anyone else – Optimist.  But I know deep down I my chances to win are very slim – Pessimist.  But the more choice word I guess should be – Realist.  Living with Multiple Sclerosis also feeds this concept. I know I have good days – optimist, I also know that the price of realizing the good days is experiencing the bad ones – pessimist, but I know I have to make the best of THIS day – realist.

Because of my M.S. and spending so much time fatigued and stuck in the bed, I began entering online sweepstakes.  I have won a few nice items: an Apple iPad, a $300 Best Buy Gift card, a $100 Overstock.com Gift card, several iTunes gift cards and a dozen or so smaller prizes.  But as you see, I  have not won a big cash prize, a car, TV, or trip; but I continue entering the sweeps.  I enter the sweeps just to have something to do and on bad days I sometimes do not even enter one.  I win something sometimes – optimist, I do not win enough for the amount I of time I spend entering sweeps – pessimist, I have SOMETHING to do to pass some time – realist.  

My M.S. is like this also, when I have a good day, I tend to do too much and overexert myself.  The good day, I get to have SOME fun – optimist, the bad days I may be in great pain and stuck in bed – pessimist, when I AM stuck in bed I can remember the good days – realist.  A common saying in the M.S. community is, “I have M.S. but M.S. doesn’t have me” – optimistic.  Reality, there are days that my M.S. does have me – pessimistic.  Few people know truly how my M.S. complicates my life.  I try only to let people see the optimistic side, the healthy side of my life I do get to enjoy.  Since I do tend to project the image as someone healthy, I miss out on truly helping others understand the impact M.S. has on my life.

Staying in Medellin, Colombia as much as I do not only helps with my M.S., it also helps me mentally!  Medellin is known as “The City of Eternal Spring”.  The milder climate does help in that I do have fewer relapses and often when I do have a relapse, it may not be as severe.  This is a big plus!  The biggest benefit is that I am able to live independently!  Living totally on my disability income in the U.S. is impossible for me, but here in Medellin, I can afford to have my own apartment and feed myself.  There is little money left for other things, but the advantage of feeling independent out-weighs the disadvantages.  The downside of this independent life means I also have to sacrifice seeing my family because the M.S. limits my traveling and the money for flying is also VERY limiting.

Friends usually see me as complicated and difficult.  They do not realize what I have to do in order to “feel” like meeting for a dinner or beer – it takes careful planning for me!  I once wrote how I feel like Sid the Sloth from the Ice Age movies (https://thomasajohnston.com/2011/03/05/trapped-in-an-ice-age/).  I feel most of my friends simply tolerate me, but like Sid’s herd, my friends do down deep care about me.  I use the expression “Colombian time” in Medellin because Colombians just do not seem too concerned about schedules, appointments and timing.  This complicates my being part of a herd in Colombia because even when I explain how I NEED to keep schedules because of my health issues, the relaxed attitude of Colombians is more important to them than my schedule.  I rest, I medicate based on being somewhere at a certain time and then they see me as inflexible when they say we have changed the plans or times and just think I have the ability to adapt that easily.  Like Sid… I am sometimes abandoned.

Then again, I find it easy to thin my herd or “clean out the friend closet” sometimes!  Some people make it easy!  As I am sure I make it easy for some to reclassify me as a former friend.  I have become a self imposed hermit and actually find I enjoy being alone.  Limiting my time with friends helps me keep friends!  lol  I am very happy for the few friends I do have in my herd – Optimist.  I do wish making new friends was not so difficult for me – Pessimist.  This desire drives me to improve myself and educate even friends of how M.S. keeps me Optimistically Pessimistic or just a realist?

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